「她們回國只能等死」：香港重病外傭的掙扎2025年4月14日
[col]: https://leg.colorado.gov/bill_files/111670/download。safew官方版本下载对此有专业解读
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Vosoritide的成功，再次向外界证明了罕见病赛道的巨大潜力：ACH看似是罕见病，但明确的致病机制、典型的临床表现，叠加数万级的患者基数和迫切、长期的治疗需求，使其成为了一个极具开发价值的 “不罕见” 罕见病市场。
"Leaders trying to establish their partnership, as well as drive the business and evolve the strategy - and doing it in a way that doesn't create confusion in the organisation - is usually very difficult if they don't know each other," says Remick.